I always wanted around a 2 year gap between babies but obviously with the need for IVF and wanting to breastfeed that was never going to be reasonably practicable and actually, given how challenging Oscar has been, I'm glad that's turned out to be the case. If we could have tried naturally we might, in a moment of madness, have already ended up conceiving and I don't think that would have worked for any of us. I never wanted a big gap between my children but I'm open to a slightly bigger gap that I was previously. I'd really like them within 4 years though, I think any more just puts them at completely different stages of life all the time and, until adulthood, they might find it hard to be close. Obviously they might not get on regardless of the age gap but I want to give them the best chance possible.
So, our original plan was always to have our baby and then use our frozen embryo to make a roughly 2-3 year gap. I wanted to breastfeed for the first 12 months, wean and get started again when Oscar was around 14-15 months. We figured it would be around a 6 month process, plus 9 months of pregnancy which would lead to a sibling being born when Oscar was 2.5 years old. Obviously this was all very vague but in my head I thought we might transfer again at the back end of 2019 or very early 2020, leading to a sibling before Oscar turned 3. Obviously this all relies on our frozen embryo actually sticking, another reason I want to get started early in case we have to go down other routes.
As it has turned out we have had a few complications:
We found out recently that, instead of around £1000, we are looking at around £2500 (£650 for Sheffield's costs, £1400 for London's costs and £400 for medication) - fortunately we have savings to cover this and we may be able to knock it down as Sheffield and London are only doing certain parts and those costs are for full embryo replacement cycles, but it was a bit of a bummer.
We found out that we couldn't even start the referral process until I had finished breastfeeding and my periods had returned, which meant a slightly longer wait.
Oscar has only just weaned from the breast, just after he turned 19 months.
There's around a 3+ month waiting list just for referral.
I spoke to our IVF Nurse recently who informed me of the process and costs. Basically, we can have the fertility tests and referral on the NHS and then once we see the Consultant to get the process started we pay the fees (in full). So she told me that once I'd stopped breastfeeding and my periods had returned I should go to my GP and ask for the referral. She said they might be kind enough to arrange the blood tests in advance which saves a bit of time as they have to be done throughout the cycle.
Fortunately, my periods returned within 5 days of him weaning so last Wednesday (19 June) I went to see the GP to ask for a referral. I was seen by the GP who is the Senior Partner for the practice. He's an older, slightly eccentric gentleman whom I've never met before and, my goodness, it was not a productive exercise. I expected this to be the simple bit but, as is often the case with IVF, it was not. He basically told me that it was his understanding that, as I have a live child, the NHS won't touch me so all he could do was make a private referral (although I could self-refer anyway if that was the case). He did say that he might be willing to do some very basic blood tests for me if I clarified exactly what they were. I explained that my nurse had told me to ask for the referral and that the blood tests were basic day 2 and day 21 fertility tests. Apparently that wasn't clarification enough so I showed him the email from her explaining the referral process. That STILL wasn't enough so he sent me away to speak to her again and find out exactly what the blood tests were (as a senior GP I figured he'd know, even I knew that it was day 2 LH/FSH and day 21 progesterone, which I said, but I didn't want to miss anything) and send an email to the surgery for his attention so he could provide me with the blood form. He basically said that he wouldn't/couldn't make the referral and that was that.
The following day I emailed our nurse who, as usual, was absolutely fabulous. She assured me that we were eligible for the tests and referral on the NHS, as it is quite common practice for them. She detailed the blood tests that were needed and got back to me within less than 48 hours. She said she was looking forward to seeing us again, offered to help in any way that she could with the GP and provided details of their business unit so he could speak to them if he was unhappy with the process.
So on Monday (24 June) I emailed the GP surgery, for this particular doctor's attention, and asked him to get back to me with regards to the referral and the blood test request form. Needless to say I haven't heard anything yet (26 June). I did have the delight of speaking to him for almost 10 minutes on the phone this morning, regarding Oscar's reflux, where he was JUST as unhelpful but that's a whole other story.
Anyway - this whole thing has left me feeling a little deflated. Since I've stopped breastfeeding Oscar, presumably due to hormones, I am incredibly broody. It doesn't help that one of my best friends is pregnant, although it kind of does help because I can live vicariously through her. She went through 4 years of trying to get pregnant too and has a little IVF baby growing inside her so I'm 100% happy for her and genuinely not jealous. But it doesn't stop me wanting to get things moving. In my head, the timeline from here will be a little like this:
Referral made by end of July.
Appointment for October/November, blood tests done in meantime.
Baseline scan and appointment with Consultant in December/January.
Start treatment February/March.
Transfer April/May.
IF successful, baby due late 2020/early 2021.
By that timeline, we would be looking at around 18 months from now before any baby was born and only actually around 9 months from now for me to be pregnant again which, when I phrase it like that, doesn't sound so bad. I'm not desperate to have another baby right now and we have lots of other stuff going on, but I really would love to be pregnant again sometime soon, certainly before this time next year. I really don't want a Christmas baby which could well be a possibility if my timeline is correct. Potentially, it could all happen quicker and we could be looking at transfer earlier in 2020 (I think this year is definitely off the cards). However, I am also very aware that it could take longer. It could be more of a summer transfer, with any baby due spring 2020.
Also, this is ALL very hypothetical. We could go through this whole process and not end up with a baby, or even a pregnancy. Six months ago I would have told you that I was entirely happy with Oscar and, whilst I would like another one, I wouldn't be devastated if it didn't happen. However, I have settled into motherhood a lot more in the last six months and by the time any potential baby comes Oscar will be much older and, hopefully, much less demanding. He will also be in free nursery hours so any baby can have lots of one-to-one time with me, which Oscar had the benefit of, so I think this is actually reasonably good timing. More importantly, we have become very aware that if we don't have any more children, Oscar may be very isolated. I'm quite isolated, I don't have many friends and I have no siblings. Ant has a brother and two step-brothers - his brother isn't likely to have children any time soon and we don't see his step-brothers regularly, although one of them does have a little boy only 4 months older than Oscar. We will have our friend's baby for Oscar to grow up with and hopefully he'll be better at making friends at school that we were, but it would still be nice for him to have someone else, someone who is always there.
The above point is especially important as the chance of him having high-functioning autism is quite high. I am currently on a (very long, 15 months to be exact) waiting list to be assessed for autism having scored 40/50 on their preliminary test, with a score of 26+ making you eligible for assessment. Ant has also done the same assessment and scored 40, although in different areas, and will be applying to the waiting list soon too. Given that there's a high chance of us both being autistic, poor Oscar doesn't really stand much chance. He's certainly not going to be severely autistic, unless something changes drastically, but it would be no surprise to us if he struggles to make friends.
I wasn't going to write about this for a while yet. I often don't have time to sit and write blog posts or to even gather my thoughts so, as much as I felt I ought to document it, I was going to at least wait until we had a referral in place. However, I found out earlier that my ex-boyfriend and his wife are expecting their second child. They have a son who is about a month younger than Oscar and it just really, really hurt. Partly because I'm a little bitter at his happiness knowing full well he treats her just as badly as he treated me but mostly because they, and most people, don't have to worry about this stuff. They just decided "let's have another" and then it happened. We have a very different experience to those who have fertility issues and I'm not saying that our situation is worse than theirs, it isn't. However, we have never had the option of even trying naturally, I've never tracked my ovulation, I've never taken a pregnancy test and eagerly awaited the results. We have had to plan every single step of the way - in some ways, compared to those with fertility issues, it's a luxury. They don't get to plan, they have endless disappointments and their outcome is about the same as ours. BUT I know a fair few people who had IVF for their first, which boosted their fertility and then they got pregnant naturally the second time, often by surprise. That isn't even an option for us. I'm not saying I would rather have fertility issues, I wouldn't. I like to plan and I couldn't handle the endless disappoints. I think the real bummer here is that this all might not even be necessary. If Ant doesn't have the gene, then this is unnecessary, which is going to be a real kick in the teeth if we end up not being able to have a second child. Similarly to the above issue, I don't wish we'd had him tested instead. Sure, if it was a negative result then it would make our lives SO much easier but if it was positive, that would be awful for our mental health and not something that we want to have to consider at this point in time. So we are somewhat stuck between a rock and a hard place.
If this cycle fails, I don't know what we do. I'm almost reluctant to start it because, while that embryo remains frozen, we have hope. We currently have the possibility of trying for another child and can dream about it. If this cycle fails, that's pretty much it and I don't think I can accept that. So then we try again... we end up in a lot of debt... we maybe still don't conceive... we end up with a very big age gap between our children. Here's hoping they find a cure for HD so we can get Ant tested and have a postive outcome whatever the result. Yes, if it's positive we would still need IVF to continue (even with a cure we wouldn't want to put that on one child and not another, it wouldn't be fair) but if it was negative we could try naturally and, if it's later than planned, so what. We have no particular love of travelling, we are very family oriented and if Oscar's a teenager by then we have a ready made babysitter. I'm open to the possibility of expanding our family much later on and I will forever remain hopeful. To be honest, by the time Oscar and any other child are teenagers I'll probably have hit broody again so, if trying naturally is an option, I might go for it - I haven't discussed this with Ant though! We've talked about fostering so maybe we'd do that instead, who knows.
All I've ever wanted was to be a mother and I've achieved that. Having Oscar has fulfilled that need and means I don't really "need" another child. But in some ways it has made me want another one so much more because this journey has been so incredible and watching him learn makes my heart fill with more love than I ever thought possible.
Anyway, that's a big, long update on things at the moment because I REALLY needed to vent. Ciao!
Update - I wrote this post on 26 June but due to internet issues it didn't get posted. However, today (4 July) I rang the GP to ask about the email I'd sent. Turns out it hadn't even been passed on to the GP. They apologised and said he was now on holiday so they'd had to get someone else to look at it - which might actually work in my favour! They said they'd put it in front of someone this afternoon for them to get back to me tomorrow so I remain hopeful... if my maths is correct I'll need to get the first blood test done next Wednesday so we shall see how it goes!