Weight: He ended up being weighed in A&E on Saturday night at 22+2 and was 6.36 kg (14 lb) so he's finally hit a stone and had put half a pound on in just under 2 weeks! It's great to know that even whilst I've been on dairy he's continued his weight gain.
Health: I'm adding this as a new section because we keep running into problems and this is the easiest place for me to keep an accurate record of what's going on. Last Friday our GP increased his ranitidine to the maximum dose for his weight and asked us to give it a week to see how he got on. Unfortunately on Saturday night he has a really nasty choking episode, completely unprovoked, and ended up struggling with his breathing. We called 111 who sent us to A&E - I cannot praise them enough as we were seen and dealt with in under 2 hours thanks to a dedicated Children's A&E at our local hospital. They added Gaviscon in alongside his ranitidine and asked me to give it a few days to see the effect then come off dairy again. Unfortunately we can't get him to take the Gaviscon so the GP advised us to leave it and just wait for the hospital appointment next month. He's been super uncomfortable for about an hour before pooping and pooping every couple of hours, his skin has really flared up with the eczema spreading and he's congested, coughing and generally unhappy. He's really uncomfortable on his back now too, to the point where even changing his nappy is hard because he's writhing around and gagging. This seems to have coincided with an increase in my dairy intake over Easter so hopefully now I'm off dairy again (as of tomorrow) he will feel better. Roll on 15th May because I'm sick of seeing him suffering all the time and we seem to be getting nowhere - I feel like the GP isn't taking me seriously because he is always happy when we see her - typical!
Feeding: He's coughing a lot during feeding and still wanting to feed very regularly, especially at night. He definitely feeds for comfort too so hopefully when his reflux is better he won't need to feed so often. He seems to really be ready for weaning so I'm excited to get started - for now I'm giving him a sippy cup with a little water in and a spoon to play with in his highchair whilst I eat my dinner - he ends up soaked but he really enjoys it!
Sleep: Sleep is shocking - he's rarely going more than 2 hours and by 3 am he's awake every hour. Even if I put him in our bed he is fidgety and uncomfortable so neither of us sleep well. He's waking up coughing or being sick at night, he's congested and snoring and just generally unsettled. However, I have been getting him to nap longer than 30 minutes in the day by gently rousing him a little after 25 minutes to interrupt his sleep cycle and get him into a deeper sleep - a tip I picked up from the IVF/mummy community on Instagram!
Routine: Mostly just trying to get through the days/nights without losing my mind and counting the minutes til daddy comes home so we can parent together. I often can't wait for daddy to take over so I can have a bath but in half an hour I'm missing my baby and head back, it's just nice to have the adult company too.
Likes/dislikes: He's turning into a proper gigglebum and loves simple things like you blowing gently on his face, the anticipation is hilarious to him too! He's hating nappy changes at the moment because he's so uncomfortable and obviously doesn't understand that the more he wriggles the longer it takes.
Firsts: First time going to a playcentre and trying a Jumperoo - they aren't good for baby's walking development if you use them a lot but a few minutes on an odd occasion is fun. First A&E trip which is a big one!
Milestones: He's finally moved into 3-6 month clothes in the last few days - although they're still a bit big! It's always great putting him in new cute outfits for the first time.
Things we did: We had a productive weekend doing stuff around the house and seeing some friends with their kids at a soft play centre. I've been using the evenings to read up on weaning and plan the first couple of weeks. Today we went out for lunch with my mum and grandparents too. At home we are working hard on sitting/rolling and doing lots of story/song time.
Me: I mostly just look like an extra from The Walking Dead and I'm pretty tired. I have a really short fuse at the moment, maybe because I use all my patience dealing with OJ so I have none left for anyone else. Thankfully ALS is wonderful, both as a father and husband, so I'm incredibly lucky!
22 weeks 1 day - flipped himself over on my lap and headed straight for daddy's Easter egg!
22 weeks 2 days - playing with his toys while we got some pictures up on the wall.
22 weeks 2 days - just after being discharged from A&E, waiting for his medicine.
22 weeks 3 days - could he look any more fed up?
22 weeks 4 days - replaced myself with cushions so I could get some food!
22 weeks 5 days - first 3-6 month outfit, how cute?!
22 weeks 5 days - I just love those little cheeks <3
22 weeks 5 days - a rare sight of him sleeping in his Moses basket!
22 weeks 5 days - everyone was sleeping (although the camera woke the cats) so I got a hot meal, miracles do happen. NB. OJ woke up 3 mouthfuls in so I had to eat quickly but I'm still counting it as a win!
22 weeks 6 days - rocking his little Star Wars jumper!
23 weeks - little dungarees which lasted approximately 30 minutes before he pooped on them... this doesn't even look like him!
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