This week has been hectic but great...
I had my hospital appointment on Tuesday and was told that it's almost definitely not carpal tunnel syndrome. I saw the Consultant that I was meant to have seen in the beginning and he was far more helpful and looked at me as a whole instead of just the specific thing I'd been referred for. He's suggested that the problem may stem from my neck as I have a lot of pain there and it's probably just a trapped nerve or something so he's arranging an MRI for me and I'm back in six weeks for the results... fingers crossed I get some answers although I'm sure the test results will be 'normal'. Apparently there's definitely something wrong with me but nothing that tests will ever show up and nobody can figure it out.
I started my new job on Wednesday which (despite a few glitches in the system and me not having half the things I need to do my job thanks to poor management) is FAR more interesting than my last job already - and I've not even started the real work yet. I have a lovely team of people to work with and it's far better pay than before, plus I don't get time to pig out on junk food. It's also been a bonus not typing for the first few days - given my hands and neck a rest. Hopefully the enjoyment lasts as I can see it being a great job.
I also had a pantomime audition on Wednesday which I feel went quite well. I won't find out the outcome until 1st September but if I get it I've been warned the costume will be quite skimpy so a good incentive to keep myself in shape.
Other than that it's been a pretty standard week but I've felt pretty well, had some good gym sessions and enjoyed a fair amount of 'me-time' this weekend whilst ALS has been at work all weekend.
Now to get all my cleaning finished and get some food before ALS gets home!
Mine and my husband's journey to have a child free from Huntington's disease and keep future generations safe!
Sunday, 17 August 2014
Sunday, 10 August 2014
Good news everyone!
I've not updated for a while but it's been a very busy week or two. Firstly and probably most excitingly I have managed to get myself a new, better paid job which is far closer to home and a lot less monotonous than the one I already have - I start on Wednesday this week and I can't wait, I'm definitely ready for a new challenge. Plus, it's at our local hospital... what better place to work for someone with as many health problems as me haha!
ALS and I went to Leeds yesterday to watch Europe's Strongest Man for the second year running and had an amazing time, despite both getting incredibly sunburnt (the forecast said rain/cloud/storms all day) after being sat in direct sunlight for 8 hours plus. Definitely worth it though and we've learnt a valuable lesson about not paying attention to the weather forecast. I also got to sit next to a couple with the most adorable six month old baby who seemed to take quite a liking to me and his parents were very friendly too.
Feeling a bit slow today after driving four about 4 hours yesterday plus all the sitting in one spot and just a generally very long day but after a chilled out day today I'm sure I'll be right as rain tomorrow - think we're going to watch a movie and get a Chinese in!
I have my appointment on Tuesday to make the decision about my operation which I think I'm going to go for - it'll get in the way of my powerlifting training BUT it'll be worth it in the long run, rather than having to have it done later on when I'm wanting to compete (if I ever get there).
SO nice to have such a positive post for once - my health is still moderately failing me but I'm happy, ALS is happy and our lives are starting to come together nicely so that's what matters!
:)
ALS and I went to Leeds yesterday to watch Europe's Strongest Man for the second year running and had an amazing time, despite both getting incredibly sunburnt (the forecast said rain/cloud/storms all day) after being sat in direct sunlight for 8 hours plus. Definitely worth it though and we've learnt a valuable lesson about not paying attention to the weather forecast. I also got to sit next to a couple with the most adorable six month old baby who seemed to take quite a liking to me and his parents were very friendly too.
Feeling a bit slow today after driving four about 4 hours yesterday plus all the sitting in one spot and just a generally very long day but after a chilled out day today I'm sure I'll be right as rain tomorrow - think we're going to watch a movie and get a Chinese in!
I have my appointment on Tuesday to make the decision about my operation which I think I'm going to go for - it'll get in the way of my powerlifting training BUT it'll be worth it in the long run, rather than having to have it done later on when I'm wanting to compete (if I ever get there).
SO nice to have such a positive post for once - my health is still moderately failing me but I'm happy, ALS is happy and our lives are starting to come together nicely so that's what matters!
:)
Monday, 4 August 2014
Hypochondriac!
After last week's episode I got myself off to the doctor's on Wednesday and they booked me in for a spireometry test on Thursday to check if I have asthma and was told that I'd only need an appointment if there was anything wrong with the results.
I rang the doctor's this morning having not heard anything and they said they'd got a note on my file to make me an appointment so I booked in for this afternoon and spent the day worrying. When I finally got to see the doctor he told me, in no uncertain terms, that I'm fine. He said they'd ruled out emphysema, bronchitis, COPD etc. (I'm pretty sure I'd be in a FAR worse state if I had any of those) and that I just had a bit of an occasional wheeze and to keep taking my inhaler as needed. He then insinuated that they were panic attacks (and is the third person to do so). I appreciate they have to cover all bases but I know they aren't panic attacks seeing as they have happened at times when I'm very chilled out and not worrying about anything. I don't feel panicked at the time and so far they've only happened when relaxing. I was so frustrated I didn't even ask about asthma.
I'm beginning to wonder if maybe it is all in my head and I imagine all these symptoms and I'm actually fine. I know this isn't the case having spent hours in A&E on oxygen and steroids etc. but it just feels like I never seem to get anything that can be easily tested for. When I was waiting to be diagnosed with the fibromyalgia a lot of people (medical and otherwise) implied it was all in my head or that it was a mental problem and even to this day there are still people who are convinced I'm just whining about nothing. Even doctors question who diagnosed me, when, how... it just makes me feel like a fraud.
Don't get me wrong, it's great news hearing that it's nothing serious and that I'm 'fine', I just wish I actually felt it...
I rang the doctor's this morning having not heard anything and they said they'd got a note on my file to make me an appointment so I booked in for this afternoon and spent the day worrying. When I finally got to see the doctor he told me, in no uncertain terms, that I'm fine. He said they'd ruled out emphysema, bronchitis, COPD etc. (I'm pretty sure I'd be in a FAR worse state if I had any of those) and that I just had a bit of an occasional wheeze and to keep taking my inhaler as needed. He then insinuated that they were panic attacks (and is the third person to do so). I appreciate they have to cover all bases but I know they aren't panic attacks seeing as they have happened at times when I'm very chilled out and not worrying about anything. I don't feel panicked at the time and so far they've only happened when relaxing. I was so frustrated I didn't even ask about asthma.
I'm beginning to wonder if maybe it is all in my head and I imagine all these symptoms and I'm actually fine. I know this isn't the case having spent hours in A&E on oxygen and steroids etc. but it just feels like I never seem to get anything that can be easily tested for. When I was waiting to be diagnosed with the fibromyalgia a lot of people (medical and otherwise) implied it was all in my head or that it was a mental problem and even to this day there are still people who are convinced I'm just whining about nothing. Even doctors question who diagnosed me, when, how... it just makes me feel like a fraud.
Don't get me wrong, it's great news hearing that it's nothing serious and that I'm 'fine', I just wish I actually felt it...
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