Today was day 5 of the Gonal F injections so, if my ovaries are playing ball, this could be about halfway to egg collection. I'm starting to get a little nervous for the scan on Friday in case nothing is happening, but I can definitely feel something going on down there.
My stomach has been really gassy all day today and I've had to go to the toilet quite a few times as well, which is irritating. I'm assuming this is injection related and it certainly doesn't feel like a bug as I'm okay in myself.
The other side effect I forgot to mention yesterday is spots - I'm breaking out like a teenager! I had really bad acne in my early teens and even now my skin isn't great, but it's been a long time since it was this bad. It's a small price to pay though.
I really thought I'd be missing the gym by now but, to be honest, I'm quite glad that I'm on orders to rest and take it easy because I'm absolutely drained and really don't feel like training. I'm getting plenty of gentle exercise in by going walking (the new Pokemon Go game is really helping with the motivation for this) every day. If ALS is working I have to walk either to or from work anyway so even on days where I really don't feel like it, at least I'm getting a bit of exercise.
I'm going to try and get an early night in tonight as we've got to be up extra early tomorrow to start the Cetrotide injections - wish me luck!
Tuesday, 23 August 2016
Monday, 22 August 2016
Hello, Side Effects.
Today is day 4 of my Gonal F injections and the side effects are starting to kick in. I'm not sure what's actually side effects and what is unrelated (or related to my EDS instead) but here's what's going on at the moment:
Tiredness
Waking up this morning was unbelievably hard. I had to physically force my eyes to stay open. It's been a long time since I've felt so soul destroyingly tired! This is made so much worse by the fact that I've given up caffeine for the purpose of increasing my fertility. I'm not a caffeine addict but I am partial to a little boost on days when I'm feeling really tired. Trying to fight through without a pick me up was hard this morning but some Lucozade and lots of water seemed to do the trick by about 11:30am.
Cramps
These are still real mild (less painful than my normal menstrual cramps) but I have had some definite cramps in my lower abdomen/groin area throughout the day today.
Bloating
I feel really bloated and gassy - honestly, I've spent most of the day trying not to break wind in the office! I expected the bloating but not in that way.
Sciatica
I was off my feet for a little while in June with sciatica and it seems to have come back with a vengeance over the last couple of days. I'm not sure if this is related at all but either way it's something I could do without.
All in all the side effects are mild and really not too troublesome at the moment, so hopefully that's the way they stay.
On a side note, for no apparent reason today's injection really hurt - I got ALS to do it for me as, although I'm happy to do it myself, it's a bit of an awkward angle. For some reason though, it stung more going in, it hurt when he injected the liquid and it even hurt coming out. ALS is putting it down to him trying to do it on the left side of my stomach with his right hand so it was an odd angle for him too - maybe I'll just stick to doing it myself from now on. He was very apologetic though and it was still far from unbearable!
We had a little look at the injections that start Wednesday morning (we have to mix the medication for these) and they look pretty complicated. Unfortunately to get them at the same time every day they're going to have to be done at 6am (as we have to leave the house at 6:15am on Friday to get to our appointment in Sheffield for 8am). So on Wednesday I'm going to have to get up an hour earlier than normal just to jab myself... not my idea of a good start to the day! But it will all be worth it :)
Tiredness
Waking up this morning was unbelievably hard. I had to physically force my eyes to stay open. It's been a long time since I've felt so soul destroyingly tired! This is made so much worse by the fact that I've given up caffeine for the purpose of increasing my fertility. I'm not a caffeine addict but I am partial to a little boost on days when I'm feeling really tired. Trying to fight through without a pick me up was hard this morning but some Lucozade and lots of water seemed to do the trick by about 11:30am.
Cramps
These are still real mild (less painful than my normal menstrual cramps) but I have had some definite cramps in my lower abdomen/groin area throughout the day today.
Bloating
I feel really bloated and gassy - honestly, I've spent most of the day trying not to break wind in the office! I expected the bloating but not in that way.
Sciatica
I was off my feet for a little while in June with sciatica and it seems to have come back with a vengeance over the last couple of days. I'm not sure if this is related at all but either way it's something I could do without.
All in all the side effects are mild and really not too troublesome at the moment, so hopefully that's the way they stay.
On a side note, for no apparent reason today's injection really hurt - I got ALS to do it for me as, although I'm happy to do it myself, it's a bit of an awkward angle. For some reason though, it stung more going in, it hurt when he injected the liquid and it even hurt coming out. ALS is putting it down to him trying to do it on the left side of my stomach with his right hand so it was an odd angle for him too - maybe I'll just stick to doing it myself from now on. He was very apologetic though and it was still far from unbearable!
We had a little look at the injections that start Wednesday morning (we have to mix the medication for these) and they look pretty complicated. Unfortunately to get them at the same time every day they're going to have to be done at 6am (as we have to leave the house at 6:15am on Friday to get to our appointment in Sheffield for 8am). So on Wednesday I'm going to have to get up an hour earlier than normal just to jab myself... not my idea of a good start to the day! But it will all be worth it :)
Sunday, 21 August 2016
It's finally happening!
After a lovely 2 week honeymoon in July, we have finally, officially started our IVF journey.
We had an appointment booked to hopefully get us started on the injections on 19th August. At this appointment I needed to be on my period and was told to stop my pills on 14th August. I'd had to double up packets as you have to be on them for 21 days before you stop and if I'd had my week off as I normally would, I'd have only had 14 days on the pills before I came off them.
As you can imagine, after 6-7 weeks with no period I was starting to feel pretty bloated and had incredibly sore boobs so I was pretty glad to see the back of the pills on Sunday. However, I do tend to have to be off them for 4-5 days before my period shows up. At 3am Friday morning (just 5 hours before our appointment) I woke up and still no sign. Needless to say I was pretty frustrated as I wouldn't be able to start the injections and would probably have to travel back to Sheffield the following day.
Fortunately about 5:30am it finally showed up and at 6:15am we headed off to Sheffield for our appointment.
The Appointment:
We were told that I'd need a scan and blood tests, which are always done at a Friday morning clinic and this clinic is first come, first served. Clinic starts at 8am but as I really needed to get back to work as soon as possible we arrived around 7:30am to ensure we were first seen.
Our usual nurse was on annual leave so another woman took my bloods (which was painless at the time but has bruised pretty badly and is now rather sore). She asked me if I was bleeding and when I said it had only been for about 3 hours she told me it was probably too soon to start the treatment today and I'd most likely have to come back tomorrow - not what I wanted to hear, especially as it's a 100 mile round trip! Then I was taken into another room for an internal scan and I cannot praise the nurse enough. She took the time explaining what I could see on the screen and really put me at ease. My womb lining was thin and ovaries suppressed (as they should be after taking the pill) and because I've been on the pill for a good few years, although I'd only just started my period, my lining was thin enough to be able to start the treatment.
I was given the prescription for the next week's worth of medications and told to ring between 2-3pm to check that everything was okay with my bloods and to confirm the dose. Then we were sent off to the pharmacy and back on our way home.
Just a note for anyone having IVF on the NHS, you do have to pay for the prescriptions - our total was about £25 as there were 3 different medications.
To be honest I was a little disappointed with this appointment as we were given no recap on how to do the injections and everything seemed very rushed. Fortunately all the medications come with detailed instructions so we've managed to follow these - but it would have been easier to see it again as it's over 2 months since we were shown!
Starting Treatment:
As I'd gone back to work, ALS rang the clinic in the afternoon and they gave me the go ahead to start the Gonal F injections that evening. These have to be done at the same time every evening and we've chosen 7:30pm as it fits around all our other commitments.
The first one was pretty nerve wracking and ALS did it for me. The Gonal F comes in a really handy pen device so you just have to screw the needle onto the end, insert it into the skin and then press a button on the top. Surprisingly it was pretty painless. I've read on other blogs that it hurts less if you take the medication out of the fridge about 30 minutes before you inject it so this is what we did.
Yesterday I did the second injection by myself with ALS there for support. I'd got to learn to do it myself as tonight he's at work so I had no choice to do it alone. Both nights have been fine and I'm pleasantly surprised how easily I'm managing.
So far I haven't had any side effects other than a little bloating and really mild pain, but that could be just down to my period anyway.
On Wednesday morning we add in a second injection! I'll try to keep you up to date with what's going on.
We had an appointment booked to hopefully get us started on the injections on 19th August. At this appointment I needed to be on my period and was told to stop my pills on 14th August. I'd had to double up packets as you have to be on them for 21 days before you stop and if I'd had my week off as I normally would, I'd have only had 14 days on the pills before I came off them.
As you can imagine, after 6-7 weeks with no period I was starting to feel pretty bloated and had incredibly sore boobs so I was pretty glad to see the back of the pills on Sunday. However, I do tend to have to be off them for 4-5 days before my period shows up. At 3am Friday morning (just 5 hours before our appointment) I woke up and still no sign. Needless to say I was pretty frustrated as I wouldn't be able to start the injections and would probably have to travel back to Sheffield the following day.
Fortunately about 5:30am it finally showed up and at 6:15am we headed off to Sheffield for our appointment.
The Appointment:
We were told that I'd need a scan and blood tests, which are always done at a Friday morning clinic and this clinic is first come, first served. Clinic starts at 8am but as I really needed to get back to work as soon as possible we arrived around 7:30am to ensure we were first seen.
Our usual nurse was on annual leave so another woman took my bloods (which was painless at the time but has bruised pretty badly and is now rather sore). She asked me if I was bleeding and when I said it had only been for about 3 hours she told me it was probably too soon to start the treatment today and I'd most likely have to come back tomorrow - not what I wanted to hear, especially as it's a 100 mile round trip! Then I was taken into another room for an internal scan and I cannot praise the nurse enough. She took the time explaining what I could see on the screen and really put me at ease. My womb lining was thin and ovaries suppressed (as they should be after taking the pill) and because I've been on the pill for a good few years, although I'd only just started my period, my lining was thin enough to be able to start the treatment.
I was given the prescription for the next week's worth of medications and told to ring between 2-3pm to check that everything was okay with my bloods and to confirm the dose. Then we were sent off to the pharmacy and back on our way home.
Just a note for anyone having IVF on the NHS, you do have to pay for the prescriptions - our total was about £25 as there were 3 different medications.
To be honest I was a little disappointed with this appointment as we were given no recap on how to do the injections and everything seemed very rushed. Fortunately all the medications come with detailed instructions so we've managed to follow these - but it would have been easier to see it again as it's over 2 months since we were shown!
Starting Treatment:
As I'd gone back to work, ALS rang the clinic in the afternoon and they gave me the go ahead to start the Gonal F injections that evening. These have to be done at the same time every evening and we've chosen 7:30pm as it fits around all our other commitments.
The first one was pretty nerve wracking and ALS did it for me. The Gonal F comes in a really handy pen device so you just have to screw the needle onto the end, insert it into the skin and then press a button on the top. Surprisingly it was pretty painless. I've read on other blogs that it hurts less if you take the medication out of the fridge about 30 minutes before you inject it so this is what we did.
Yesterday I did the second injection by myself with ALS there for support. I'd got to learn to do it myself as tonight he's at work so I had no choice to do it alone. Both nights have been fine and I'm pleasantly surprised how easily I'm managing.
So far I haven't had any side effects other than a little bloating and really mild pain, but that could be just down to my period anyway.
On Wednesday morning we add in a second injection! I'll try to keep you up to date with what's going on.
Wednesday, 4 May 2016
Big changes!
It's been an incredibly long time since I posted anything here, mostly because a lot has changed but also we're still in the preliminary stages of the IVF. However, things are started to come together and it's time to pick up where I left off.
Here are the important points since my last post:
1. In December 2015 we moved into our first home together where we'll be raising our family. It involved moving county so I'm now in a new job which is causing a fair amount of physical issues for me but that'll be explained in another post.
2. In February 2016 we got married! It was a magical, wonderful day.
3. In April 2016 we had a multidisciplinary meeting with the team in Sheffield about the IVF. All of our fertility results have come back perfect, our funding is in place and the team at Guy's Hospital in London have created the necessary genetic test for us. At this meeting, I finally also got my diagnosis of Ehlers-Danlos Type 3 confirmed by a geneticist (although they now apparently prefer to refer to it as Joint Hypermobility Syndrome). Oddly the clinching factor was a strange resistance to local anaesthetic which I brought up - I've mentioned this during dental or medical procedures a few times and been scoffed at!!
So that (very briefly) brings us to today! We have a lot of stuff coming up over the next few months (including our honeymoon) after which we will be officially starting IVF and we are provisionally booked in for egg collection at Guy's Hospital in the first week of September.
Our next appointment in Sheffield to go through the specifics of the fertility treatment is on 16th June so things from that front will probably go a bit quiet for a while however hopefully I'll be keeping you up to date with other things relating to health and fitness, food and anything else I enjoy talking about.
Here are the important points since my last post:
1. In December 2015 we moved into our first home together where we'll be raising our family. It involved moving county so I'm now in a new job which is causing a fair amount of physical issues for me but that'll be explained in another post.
2. In February 2016 we got married! It was a magical, wonderful day.
3. In April 2016 we had a multidisciplinary meeting with the team in Sheffield about the IVF. All of our fertility results have come back perfect, our funding is in place and the team at Guy's Hospital in London have created the necessary genetic test for us. At this meeting, I finally also got my diagnosis of Ehlers-Danlos Type 3 confirmed by a geneticist (although they now apparently prefer to refer to it as Joint Hypermobility Syndrome). Oddly the clinching factor was a strange resistance to local anaesthetic which I brought up - I've mentioned this during dental or medical procedures a few times and been scoffed at!!
So that (very briefly) brings us to today! We have a lot of stuff coming up over the next few months (including our honeymoon) after which we will be officially starting IVF and we are provisionally booked in for egg collection at Guy's Hospital in the first week of September.
Our next appointment in Sheffield to go through the specifics of the fertility treatment is on 16th June so things from that front will probably go a bit quiet for a while however hopefully I'll be keeping you up to date with other things relating to health and fitness, food and anything else I enjoy talking about.
Wednesday, 16 September 2015
Fertility Testing!
As I mentioned in my last post, the next step for us is getting my fertility tested whilst we wait for our funding to be approved. This means I need to come off my contraceptive pills and have blood tests at certain parts of my cycle.
I took my last pill on Sunday and will be due to start my period on Friday. The first blood test should be on day 2 of my period but my GP told me that doing fertility tests on this withdrawal bleed would be no use so I therefore need to wait until I've had a month off the pill. We worked out when I would need the first blood test (providing my cycle stays regular without the pills) and I won't be able to get the test because we'll be in Ireland for the World Powerlifting Championships (we're both competing so not going is not an option). Therefore everything has had to be put back a month. I'm going to stay on the pills, stop them in October and go for the tests in November. It's only a tiny setback and in the run of things shouldn't actually put our treatment back because it'll take a while to get funding anyway.
In more exciting new, after an 80 hour induction/labour/battle, one of my friends gave birth to a beautiful little girl last Friday. I went to visit her today (which did not help my broody feelings) and they're all doing well. Her and her husband were trying to get pregnant for over 2 years before it happened so I'm unbelievably happy for them. Total proof that the best things in life are worth waiting for :)
I took my last pill on Sunday and will be due to start my period on Friday. The first blood test should be on day 2 of my period but my GP told me that doing fertility tests on this withdrawal bleed would be no use so I therefore need to wait until I've had a month off the pill. We worked out when I would need the first blood test (providing my cycle stays regular without the pills) and I won't be able to get the test because we'll be in Ireland for the World Powerlifting Championships (we're both competing so not going is not an option). Therefore everything has had to be put back a month. I'm going to stay on the pills, stop them in October and go for the tests in November. It's only a tiny setback and in the run of things shouldn't actually put our treatment back because it'll take a while to get funding anyway.
In more exciting new, after an 80 hour induction/labour/battle, one of my friends gave birth to a beautiful little girl last Friday. I went to visit her today (which did not help my broody feelings) and they're all doing well. Her and her husband were trying to get pregnant for over 2 years before it happened so I'm unbelievably happy for them. Total proof that the best things in life are worth waiting for :)
Wednesday, 9 September 2015
You've Got Mail...
Yesterday we got our letter in the mail following our genetics appointment in August. It basically requests us to return the form saying we want to go ahead (if we do), which we returned straight away and will have crossed in the mail I assume. It also suggests that I go to my GP to arrange the fertility tests which I will be doing ASAP. I figured now would be a good way to explain the process which is written in the letter so I'll copy the relevant bits for anyone who may be wondering what happens next. Each step assumes that all has gone well in the previous test. For a bit of background, we are using Sheffield services for the local bits (not exactly local but closer than London) but the actual base for our treatment is Guy's Hospital in London.
DISCLAIMER: I am not a doctor and although this information came from the letter from my doctor it may not be medically accurate. Always check with your own healthcare professionals for information.
- "We do the work-up locally. This involves confirming your fertility. I need to send various blood samples to Guy's Hospital for them to confirm that they could do the laboratory test on the cells biopsied from the embryo." - These points aren't entirely relevant to each other, we need a blood test from myself, ALS and his father to enable them to create the DNA test. Confirming my fertility is a separate issue.
- "The basic aspects of the procedure are that the Assisted Conception Unit in Sheffield would take over the control of your ovaries. The first step would be to use some hormone treatment to down-regulate the ovaries and then more hormone treatment to stimulate the ovaries. There is a small chance that they could overstimulate your ovaries which would require coming into hospital and going on a drip." - This was explained more fully in the clinic appointment and obviously, they have to go over the risks.
- "We would fax a scan of your ovaries to Guy's Hospital for them to arrange for you to have egg collection under sedation. - After this process was explained, I'm seriously glad I won't be awake!
- "These would then be fertilised. We would take some cells from each embryo, test them on day 5 and freeze then all so that suitable ones can be transplanted at a later date. I have to tell you that there is a chance there may be no suitable embryos. - This is where all the complicated DNA testing takes place which makes this process differ from normal IVF. There is a risk that some embryos may not survive the biopsy and of course a risk that there are no suitable ones due to them all containing the chromosome 4 (affected with Huntington's disease) from ALS mother rather than his father.
- "We would only want to transfer one embryo at a time to avoid the possibility of multiple births." - This embryo could split and create twins however it's less likely than if they implant 2 embryos and also means any suitable left over embryos can be implanted later on if we are unsuccessful. This would count as the same "cycle" so would only be one of our NHS funded attempts even if we have more than one embryo transfer.
So that's the basic process, any other relevant information is below:
What is PGD exclusion testing?
We are using exclusion testing as ALS does not want to know whether he has inherited the HD gene from his mother. The gene is carried on chromosome 4 (baby will get one chromosome 4 from me and one from ALS) therefore we will only be implanting embryos which have the chromosome 4 from ALS' father, not his mother. It does mean that there could be some embryos that we don't use that have the chromosome from his mother without actually being affected but this keeps it so that nobody knows ALS' status with regards to the gene.
What are the chances of success?
According to what we have been told the chances of me becoming pregnant increase as we go along. Current the chance is about 20%. Once the cycle is started there is around a 33% chance. If we get to the stage of transferring an embryo then the chance of pregnancy is 50%. The chance of having a baby at the end may be a little lower because of other things that could go wrong during the pregnancy such as miscarriage etc.
How much funding is available?
The NHS will generally fund 3 rounds of treatment for couples who meet the criteria (this in the UK). The criteria is related to age and BMI of mum and the fact that neither parent is a smoker. It's basically the same as the criteria for standard IVF. There may be other bits to it but these are the big ones.
One round of treatment is until every available embryo has been used. If the first round is unsuccessful you will be offered a further 2 unless there is a low chance of success (such as the pregnancy was unsuccessful because of fertility issues rather than chance).
What are the risks?
There are all the same risks associated with IVF and of course the risk that embryos may be lost to biopsy. There is a minute chance that the test will be inaccurate and the baby will have the affected gene but this is incredibly rare and would require a serious medical "cock up" and a lot of bad luck along the way. There are also the same risks as any other pregnancy such as risks to the mum carrying the child and risks of the child being affected with any other kind of medical problem.
There's lots more information on all these topics at www.pgd.org.uk and if there are any questions about the emotional side of things or anything else feel free to comment or email me.
DISCLAIMER: I am not a doctor and although this information came from the letter from my doctor it may not be medically accurate. Always check with your own healthcare professionals for information.
- "We do the work-up locally. This involves confirming your fertility. I need to send various blood samples to Guy's Hospital for them to confirm that they could do the laboratory test on the cells biopsied from the embryo." - These points aren't entirely relevant to each other, we need a blood test from myself, ALS and his father to enable them to create the DNA test. Confirming my fertility is a separate issue.
- "The basic aspects of the procedure are that the Assisted Conception Unit in Sheffield would take over the control of your ovaries. The first step would be to use some hormone treatment to down-regulate the ovaries and then more hormone treatment to stimulate the ovaries. There is a small chance that they could overstimulate your ovaries which would require coming into hospital and going on a drip." - This was explained more fully in the clinic appointment and obviously, they have to go over the risks.
- "We would fax a scan of your ovaries to Guy's Hospital for them to arrange for you to have egg collection under sedation. - After this process was explained, I'm seriously glad I won't be awake!
- "These would then be fertilised. We would take some cells from each embryo, test them on day 5 and freeze then all so that suitable ones can be transplanted at a later date. I have to tell you that there is a chance there may be no suitable embryos. - This is where all the complicated DNA testing takes place which makes this process differ from normal IVF. There is a risk that some embryos may not survive the biopsy and of course a risk that there are no suitable ones due to them all containing the chromosome 4 (affected with Huntington's disease) from ALS mother rather than his father.
- "We would only want to transfer one embryo at a time to avoid the possibility of multiple births." - This embryo could split and create twins however it's less likely than if they implant 2 embryos and also means any suitable left over embryos can be implanted later on if we are unsuccessful. This would count as the same "cycle" so would only be one of our NHS funded attempts even if we have more than one embryo transfer.
So that's the basic process, any other relevant information is below:
What is PGD exclusion testing?
We are using exclusion testing as ALS does not want to know whether he has inherited the HD gene from his mother. The gene is carried on chromosome 4 (baby will get one chromosome 4 from me and one from ALS) therefore we will only be implanting embryos which have the chromosome 4 from ALS' father, not his mother. It does mean that there could be some embryos that we don't use that have the chromosome from his mother without actually being affected but this keeps it so that nobody knows ALS' status with regards to the gene.
What are the chances of success?
According to what we have been told the chances of me becoming pregnant increase as we go along. Current the chance is about 20%. Once the cycle is started there is around a 33% chance. If we get to the stage of transferring an embryo then the chance of pregnancy is 50%. The chance of having a baby at the end may be a little lower because of other things that could go wrong during the pregnancy such as miscarriage etc.
How much funding is available?
The NHS will generally fund 3 rounds of treatment for couples who meet the criteria (this in the UK). The criteria is related to age and BMI of mum and the fact that neither parent is a smoker. It's basically the same as the criteria for standard IVF. There may be other bits to it but these are the big ones.
One round of treatment is until every available embryo has been used. If the first round is unsuccessful you will be offered a further 2 unless there is a low chance of success (such as the pregnancy was unsuccessful because of fertility issues rather than chance).
What are the risks?
There are all the same risks associated with IVF and of course the risk that embryos may be lost to biopsy. There is a minute chance that the test will be inaccurate and the baby will have the affected gene but this is incredibly rare and would require a serious medical "cock up" and a lot of bad luck along the way. There are also the same risks as any other pregnancy such as risks to the mum carrying the child and risks of the child being affected with any other kind of medical problem.
There's lots more information on all these topics at www.pgd.org.uk and if there are any questions about the emotional side of things or anything else feel free to comment or email me.
Monday, 7 September 2015
Ouch.
This entire post is dedicated to mouth ulcers. They are the devil's work.
It doesn't matter how much pain I am in or how sick I am, there is nothing more depressing than a mouth ulcer. In the last 3 weeks I have had around 5, usually waiting for one to clear up before another appears. I have lost 2kg in weight (I did not want to lose weight), I have barely managed to eat and keep myself hydrated without horrible pain, I have been miserable and unable to talk, I have been probably not very nice to ALS and I am fed up.
In between mouth ulcers I had a cold for 5 days, it was a nasty cold but still more bearable than a singular ulcer!
I have tried every remedy going and just about managed to force meals down myself but they seriously get me down. I love food, it is a very rare occasion that I turn down anything edible but I have been turning down all sorts of goodies.
I get a lot of pain in my hypermobile joints and although the pain in the joints is far worse than the ulcer pain, it's just far less likely to make me want to bury my head under a pillow and sleep until it goes away.
Do you have any simple ailment that you find more depressing than anything else and people think you're making way too much fuss over? Feel free to share - leave a comment or send an email to ivfjourney2000@gmail.com.
It doesn't matter how much pain I am in or how sick I am, there is nothing more depressing than a mouth ulcer. In the last 3 weeks I have had around 5, usually waiting for one to clear up before another appears. I have lost 2kg in weight (I did not want to lose weight), I have barely managed to eat and keep myself hydrated without horrible pain, I have been miserable and unable to talk, I have been probably not very nice to ALS and I am fed up.
In between mouth ulcers I had a cold for 5 days, it was a nasty cold but still more bearable than a singular ulcer!
I have tried every remedy going and just about managed to force meals down myself but they seriously get me down. I love food, it is a very rare occasion that I turn down anything edible but I have been turning down all sorts of goodies.
I get a lot of pain in my hypermobile joints and although the pain in the joints is far worse than the ulcer pain, it's just far less likely to make me want to bury my head under a pillow and sleep until it goes away.
Do you have any simple ailment that you find more depressing than anything else and people think you're making way too much fuss over? Feel free to share - leave a comment or send an email to ivfjourney2000@gmail.com.
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